2 Sun safety knowledge and practice after pediatric solid organ transplantation: an Interdisciplinary approach
Friday September 19, 2025 from 13:35 to 15:05
MOA 4
Presenter

Camilla Cook, United States

Transplant Nurse

Boston Children's Hospital

Abstract

Sun safety knowledge and practice after pediatric solid organ transplantation: an Interdisciplinary approach

Camilla Cook1,2, Courtney Jonas1, Jennifer Gilarde1, Ashley Eppolito1, Kierrah Leger1,2, Debra Lajoie2, Michael JG Somers1,3,4.

1Pediatric Transplant Center, Boston Children's Hospital, Boston, MA, United States; 2Department of Nursing, Boston Children's Hospital, Boston, MA, United States; 3Division of Nephrology, Boston Children's Hospital, Boston, MA, United States; 4Department of Pediatrics, Harvard Medical School, Boston, MA, United States

Introduction: Sun safety is an important part of post-transplant (Tx) education and care given the risks of complications such as skin cancer with sun exposure and immunosuppression.  There is limited understanding about patient/family appreciation of this problem after childhood Tx or about the effects of directed sun safety education in the pediatric solid organ transplant (SOT) population. 
Methods: We instituted an interdisciplinary educational initiative to provide pediatric SOT recipients and their families with sun safety information and resources to implement these practices. All participants received structured education by the project lead, with interpreter services if needed. All participants received a sun safety kit including a bucket-style hat, UV protected sunglasses, sunscreen, and sun protection information focused on sunscreen use and skin cancer. Participants were surveyed to understand pre-treatment sun safety practices, knowledge about sun safety post-Tx, satisfaction with the materials/resources provided, and if behavioral changes occurred after this intervention.
Results: Between August 2023 and March 2025, a sun safety intervention was provided to 141 pediatric SOT recipients, 60 during their Tx admission and 81 during a post-Tx hospitalization. Median age of participants was 11.5 years (range 5 months-24 years) with 58% boys. 64% self-reported as white, 14% black, 4% Asian, and 18% mixed/other racial identities. 27% were Hispanic/Latino ethnicity. 52% received a kidney Tx, 37% liver, 5% heart, 4% lung, and 2% multiorgan. 12% reported no sun safety practices pre-participation, and 28% denied pre-participation knowledge of the importance of sun safety post-Tx. Although there were no demographic differences between those with and without pre-existing knowledge of sun safety, white Tx recipients were significantly more likely to report pre-existing sun safety practices than black and Asian Tx participants (95% vs 65%, p<0.002). Post-intervention, 82% report feeling very satisfied with the information/resources they received. 92% reported new or additional behavioral changes related to sun safety after this educational intervention, including all who had previously not been following any sun safety practices. 
Conclusions: Although sun safety is important post-Tx, the majority of pediatric Tx recipients and their families reported a lack of knowledge about this topic, with significant differences in the practice of sun safety post-Tx among white or black and Asian Tx recipients. An educational sun safety intervention can increase satisfaction with sun safety knowledge and, more importantly, can result in widespread changes in behavior to enhance sun safety post-Tx.

References:

[1] sun safety
[2] solid organ transplant
[3] pediatric
[4] interdisciplinary
[5] education


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